WE ARE HOME!
Yahoo...we finally made it home, right before his birthday! He is still not talking a lot but making progress and eating well so they said we could go home and celebrate his birthday in style. We have lots of follow ups scheduled, and I have lots of journaling to do, meds to give and constant supervising, as in hovering, because he can't walk very well yet...still wobbly. No seizures though for days now, so that is awesome. My husband is getting ready to go pick up our other two boys and then we get to settle in for some family time. Being home never felt so good! I am praying that we have no hospital stays in the near future, a good long break would be so very nice. I am hopeful that the new medicine will continue to work for him, and that this time we can get back to our new normal for real...from home...I guess I'm saying I don't want the new normal to involve a lot of extended hospital stays.
I will post some pictures of our "adventure" soon. You should see the smile on Atty's face, and mine for that matter. We are not in the clear all the way yet...maybe not really ever, but it does feel so good...so very, very good...to be home.