The bends and turns * the rough rapids * the slow gentle flow * the undercurrent * the wild and the tame * it's all here, come and listen.
Thursday, January 28, 2010
H. A. T. E. it
We are back at Children's hospital. Been here since Sunday. I am tired and emotionally drained. Nothing seems to be getting better. He has had less seizures today, but he is now unresponsive and hardly able to talk. He is constantly twitching and shaking and can't seem to make his mouth form the words he wants to say. It is so completely heart breaking. It's heart breaking just being here, because of course he is not the only child with a problem of some sort nor is he the worst. Hearing the crying babies night and day is really getting to me. I have my little Strawberry with me because she needs to nurse and my other two boys are at their aunties because daddy has to work. I miss them so much is hurts. I hope to see them tomorrow here at the hospital as it doesn't look like we are leaving any time soon. I hate this. I hate the seizures. I hate the medicine. I hate not having any good answers. I hate our family being spread around. I hate not kissing my other two children to sleep at night. I hate the beeping and the noise. I hate the 'completely out of control don't know how to fix this' feeling. I freaking hate it all. hate. hate. hate. It's a strong word that I generally refrain from saying. hate. hate. hate. It's the only word for me right now. It's hard not to be angry at everyone and everything right now. I know that is not rational and I am trying so hard to be pleasant to the doctors and nurses, but I feel the angry bubbling and I can hardly swallow it and smile. I haven't had the best experience here, and I often feel like even though they say they want to know how I feel or answer any questions I have they don't really. Not really. They would rather I smile and nod...and that's just not me. Never has been, never will be. I know he needs the medicine to stop the seizures and I know that it's trial and error right now for what one will work and how much, trust me I know this too well by now. But I'm not going to say I like it, or feel comfortable with some of the medicine they are giving him because I'm not. I'll do what they feel is best for him, but that doesn't mean I'm going to like it. Medicine that has never been studied in his age group? Yeah, I don't like that....don't like it at all...two meds together that aren't studied in his age group? Yeah, I don't like that either. Now my child is a zombie, I can't get him to talk or smile. I want my Atty back. Please God just let this end. Give me my Atty back. I'll take it, all the wild and craziness, I truly don't mind anymore. I don't want a zombie. I want Atty. And I want to go home.
I have a seperate blog now for me to journal about Atty's health issues. If you want to check it out Click Here. I am going to be keeping this as our family blog and updating issues with Atty on the other blog from now on.
Mommy Riah, also known as Miriah :)
~ Children are the living messages we send to a time we will not see. ~
We are all on this journey together...
My husband, Ryder
The love of my life, caring, passionate, intelligent, introverted, Mr. fix it, hard worker.
~The family is one of natures masterpieces~
and ~Childhood is the most beautiful of all life's seasons.~
My first born son, wise, protective, sassy, comical, perfectionist, snuggle bug.
My heart child, wild, curious, adventurous, loving, sensitive, fiery spirit
My littlest boy, mischievous, silly, independent, smart, tough guy, sweetheart.
My beautiul baby girl, charming, happy, strong, funny, sassy, chatterbox.
~Our brothers and sisters are there with us from the dawn of our personal stories to the inevitable dusk.~
and then there is J-bird...always on my mind.
Click on the picture to learn more about my first baby.
Busy homeschooling mom to four amazing kiddos. I met my husband when I was fifteen. It's been a long road with lots of ups and downs and I am so glad we have stayed on this path together to enjoy this adventure. I am so lucky to be married to my best friend and the love of my life. I never imagined my life could be so full, and wonderful, I am truly blessed! Never a dull moment...